Author Archives: Kelly Manz

What is ALCAPA and ARCAPA?

To read about Anomalous Coronary Artery (ACA), click here.   ALCAPA Anomalous origin of the left coronary artery arising from the pulmonary artery (ALCAPA) is a rare but serious congenital anomaly. It was first described in 1866. The first clinical description in conjunction with autopsy findings was described by Bland and colleagues in 1933, soContinue Reading

Endocardial Cushion Defects

Endocardial cushion defects, more commonly known as atrioventricular (AV) canal or septal defects, include a range of defects characterized by involvement of the atrial septum, the ventricular septum, and one or both of the AV valves. Endocardial cushion defect is a congenital defect present at birth. The severity of the symptom complex and presentation isContinue Reading

Races

I’ve always been a gym rat and would occasionally run in a local 5K with friends, but would never consider myself a runner. After doing my first triathlon with my husband (May 2012), I started running more and have grown to love it! Since 2009, Chloe has inspired me to raise awareness for CHD andContinue Reading

CHD Awareness Giveaway!

I thought it would be fun to celebrate the first day of Heart Month with a giveaway! I was lucky to team up with Lyla Bug Designs and design CHD Awareness tumblers! The names and font color can all be personalized. Check out the designs below! The cool thing about Lyla Bug Designs is thatContinue Reading

Chloe’s Story

I am a thirty-something stay at home mom to two beautiful daughters. My first child, Chloe June, was born in 2008 with a rare congenital heart defect called Taussig-Bing (DORV, d-TGA, VSD, ASD). Chloe has inspired me to raise as much awareness as I can about CHD, as well as help other heart families withContinue Reading

Latest and Greatest!

It looks like 2013 is going to be the FUNNEST year yet since starting my CHD Awareness journey back in 2009! I’m so glad I took a little break during Chloe’s baby sister Kenna’s first year. I’ve really enjoyed the past 18months with her. Her smile lights up my world! Since Chloe was born, IContinue Reading

Chloe’s little sister Kenna – 1st birthday!

This Saturday we will celebrate Kenna’s first birthday! The year has literally flown by! This week I find myself reflecting a lot on Kenna’s first year, and how very different it has been compared to Chloe’s first year. Not a good different. Not a bad different. Just different. Chloe’s first year was filled with happiness,Continue Reading

Chloe’s CMCC Surgery in Chicago

We are finally home after our 4 day adventure in Chicago! We left Wednesday and stayed on the Magnificent Mile in Chicago. The highlight of the trip was eating lots of yummy Italian food! Chloe loved going for walks in the morning and seeing all of the dogs. She even got to pet some horsesContinue Reading

Chloe’s Other Birth Defect Diagnosis

I wish I didn’t have to, but I’m going to have to start from the very beginning. Yes, I know this will be long but you will understand it better this way! Chloe was born in November, 2008. First push was strong, perfect. Second push, head was out. Angelee, the nurse delivering Chloe, told meContinue Reading

Happy 1st Birthday Letter to Chloe (S.W.A.K.)

Dear Chloe, I vividly remember the moment you were born. It all happened so fast that the nurses weren’t ready and the doctor didn’t even make it on time! I kept telling Daddy to get off the phone (he was calling Nana with an update)! We had tears of joy from the excitement and tearsContinue Reading