Adult CHD Survivor & World Cup Soccer Champion Lauren Holiday!

August 27, 2015 was nothing short of an AMZAZING night! I am beyond honored to have been invited to the final home game and retirement ceremony for CHD Survivor and World Cup Champion Lauren Holiday. Lauren was born with an Atrial Septal Defect and Pulmonary Artery Defect. She had her open heart surgery at ageContinue Reading

Run for LITTLE Hearts

2014 was the Inaugural Run for LITTLE Hearts!!!  Over 600 people came to support the cause. In 2015, close to 800 people were there! I also love having the hundreds of virtual runners participating with us on race day from where they live! This event is for all heart families – it is OUR EVENT to comeContinue Reading

Chloe’s Law will FINALLY pass in 2013!

                          Having Chloe’s Law finally reach the Governor’s desk is the ultimate Mother’s Day gift! When I began this journey in 2009, I had no idea what I was getting myself into. I was on a mission and I jumped in head first!Continue Reading

Chloe’s Story

I am a thirty-something stay at home mom to two beautiful daughters. My first child, Chloe June, was born in 2008 with a rare congenital heart defect called Taussig-Bing (DORV, d-TGA, VSD, ASD). Chloe has inspired me to raise as much awareness as I can about CHD, as well as help other heart families withContinue Reading

Chloe’s Other Birth Defect Diagnosis

I wish I didn’t have to, but I’m going to have to start from the very beginning. Yes, I know this will be long but you will understand it better this way! Chloe was born in November, 2008. First push was strong, perfect. Second push, head was out. Angelee, the nurse delivering Chloe, told meContinue Reading

Happy 1st Birthday Letter to Chloe (S.W.A.K.)

Dear Chloe, I vividly remember the moment you were born. It all happened so fast that the nurses weren’t ready and the doctor didn’t even make it on time! I kept telling Daddy to get off the phone (he was calling Nana with an update)! We had tears of joy from the excitement and tearsContinue Reading